elfwench: (Default)
Went to the PT yesterday like a good little gimp. Something the neuro doc has been trying to get me to do for a while. PT's name was Randy. Nice guy. University Hospital is a teaching hospital (duh!) so he had a student with him. Spent a full hour with the two of them, during which Randy did a very thorough history and exam. He was impressed by the amount of walking I do when I translated "long walks" into distance traveled each way. "That's more than most able bodied people do!"

He... questions my diagnosis of Cerebellar Ataxia of Unknown Cause. Says from what he sees, it's more the muscle weakness that's throwing me off kilter than brain signals going wonky. Suggests I ask the neuro doc, Dr. B, to look into that.

He also was interested in where I hurt, back pain, knee pain, etc. Been having some lumbar pain for a while, wrote it off to too much walking, backpack, old age, etc. Like my knee, another thing I just deal with day to day. So he went poking around on my back had me lean this way and that. And said I need to see the doc about this, that this looks like it's a disc problem. Thanks, I'll put it on the list. Also said, after watching me walk, that in addition to my funky gait I also favor that left knee, which is adding to the back problem. He's trying to get Medicaid to approve my coming in twice a week for PT to work on strengthening my muscles over all. I'll find out if it's approved or not by the end of next week, Friday the 13th.

So, my list of things to get checked out at the doc grows. I'm not thrilled, to say the least, but it is what it is and I'm grateful to Randy for bringing it to my attention now.

But first things first, is that hernia. Blood tests looked good, so Dr. H. has me scheduled for a CAT scan tomorrow at 1:00, have to be there before noon, though, so I can drink the "prep", and I can have nothing to eat or drink (NPO) for 4 hours prior.. So... no coffee for me in the morning. But, could be worse. I'll set an alarm for 7:30 and chuck down my meds first thing so I can get them in before I'm to be NPO.

I go back to Dr. H. on Friday the 13th, day before my birthday, and we'll discuss the CAT scan and such then and, hopefully, move on to the next step in getting this fixed, probably a referral to a surgeon? I'll bring up the stuff about the back and knee pain which aggravates the back then and see what he wants to do about that.

I do know this hernia needs fixed first, though. Randy the PT grimaced when I said I had a hernia and said he couldn't have me work on strengthening the abs until after that's fixed.

I'm a work in progress, in more than one way, I guess. ;) But, I tell you, it's a relief to be getting this stuff taken care of at last.
elfwench: (Default)
Went to the PT yesterday like a good little gimp. Something the neuro doc has been trying to get me to do for a while. PT's name was Randy. Nice guy. University Hospital is a teaching hospital (duh!) so he had a student with him. Spent a full hour with the two of them, during which Randy did a very thorough history and exam. He was impressed by the amount of walking I do when I translated "long walks" into distance traveled each way. "That's more than most able bodied people do!"

He... questions my diagnosis of Cerebellar Ataxia of Unknown Cause. Says from what he sees, it's more the muscle weakness that's throwing me off kilter than brain signals going wonky. Suggests I ask the neuro doc, Dr. B, to look into that.

He also was interested in where I hurt, back pain, knee pain, etc. Been having some lumbar pain for a while, wrote it off to too much walking, backpack, old age, etc. Like my knee, another thing I just deal with day to day. So he went poking around on my back had me lean this way and that. And said I need to see the doc about this, that this looks like it's a disc problem. Thanks, I'll put it on the list. Also said, after watching me walk, that in addition to my funky gait I also favor that left knee, which is adding to the back problem. He's trying to get Medicaid to approve my coming in twice a week for PT to work on strengthening my muscles over all. I'll find out if it's approved or not by the end of next week, Friday the 13th.

So, my list of things to get checked out at the doc grows. I'm not thrilled, to say the least, but it is what it is and I'm grateful to Randy for bringing it to my attention now.

But first things first, is that hernia. Blood tests looked good, so Dr. H. has me scheduled for a CAT scan tomorrow at 1:00, have to be there before noon, though, so I can drink the "prep", and I can have nothing to eat or drink (NPO) for 4 hours prior.. So... no coffee for me in the morning. But, could be worse. I'll set an alarm for 7:30 and chuck down my meds first thing so I can get them in before I'm to be NPO.

I go back to Dr. H. on Friday the 13th, day before my birthday, and we'll discuss the CAT scan and such then and, hopefully, move on to the next step in getting this fixed, probably a referral to a surgeon? I'll bring up the stuff about the back and knee pain which aggravates the back then and see what he wants to do about that.

I do know this hernia needs fixed first, though. Randy the PT grimaced when I said I had a hernia and said he couldn't have me work on strengthening the abs until after that's fixed.

I'm a work in progress, in more than one way, I guess. ;) But, I tell you, it's a relief to be getting this stuff taken care of at last.
elfwench: (Default)
First thought of the day: ZOMG! In just three weeks from today I'll be 50 years old! I'm a little weirded out by this fact. I really don't feel much older, especially mentally, than 30. This cannot be. True, age is only a number, but does the number have to be so big?

Usually I don't think a lot about my disability. I prescribe to the principle, "Adapt. Improvise. Overcome." I do what I've got to do in whatever way that works, even when it means that I overdo. If that means that I put on a backpack and stagger my way to the store (or at least to the bus stop, which itself is a quarter of a mile away), then so be it. But this week, and next week's goings on have brought the fact that I am disabled to the forefront of my reality.

Monday, as I posted before, I saw the neurologist about this mystery neuro disease of mine - currently dubbed Spino-Cerebellar Ataxia of Unknown Type since they've disproved the Friedreich's Ataxia with a point mutation on the "normal" gene theory through EMG and other tests. It was time for my 3 month check up to see how I was doing.

Doctor wanted me to start using my rollator. Also prescribed Occupational Therapy. But, as it would happen, the actual appointment made was for Physical Therapy, and in my home.

This was supposed to happen on Friday, but instead happened on Thursday. Why they told me Friday when the therapist I was assigned doesn't work on Fridays, I don't know. But I'm glad I was home or I would have missed it.

As it turned out, I didn't miss much. The physical therapist was a petite redheaded pixie, with an upturned nose, round face save for the pointed chin, and sparkling eyes named Jen. Her hair was cut in what we used to call a Hollywood Burr, a buzz cut with bangs: typically a boy's haircut, but on her it looked cute, oddly enough. She came up as I was using my improvised way of removing leaves from the porch and ramp, using a snow shovel in one hand, crutch in the other, and pushing the leaves down the ramp with it, and commented that it was a unique way to do that job.

We sat and talked as she did the intake, and she didn't even bother filling out paperwork. She agreed with me that what I really need is occupational therapy, and felt that there was nothing she could really do for me. Didn't even bother with having me fill out paperwork She agrees with the doctor that 2 falls in 3 months is too much and that I should use more than my crutch. Of course, if I used my crutch more consistently in the house, it might help. She is very anti-rollator and wants me to use a walker. A walker! Here I am thinking of trying to find someone to date again, and she's suggesting I use a walker. Also, how impractical can you get? I stayed calm, though I let her know I really wasn't ready for that yet. She said I'm in denial. She also said I should be asking friends and family for help.

Today I got a call from the Occupational Therapy people. I will be going to see them on Monday at University Hospital - my appointment is at 8:45 AM. Hopefully that appointment will be better. Though, why does it have to be so god damned early?

It's going to be a busy week. Tuesday I've got my appointment with CAGI for the Energy Assistance program. Friday I have my appointment with my Voc. Rehab. counselor. I've also got to see about getting my flu shot, too. Tried calling the doctor about that on Friday and got no answer. So I'll have to call them again Monday after I get back from OT. If not, I have an appointment on November 2nd with him anyhow.

Anyway, I'm tired, and I've mused about things here long enough. I think I'm going to have some more coffee and see what I can throw together for dinner. And once I get my blood sugar up I'll see about answering some emails.

Thanks for reading.
elfwench: (Default)
First thought of the day: ZOMG! In just three weeks from today I'll be 50 years old! I'm a little weirded out by this fact. I really don't feel much older, especially mentally, than 30. This cannot be. True, age is only a number, but does the number have to be so big?

Usually I don't think a lot about my disability. I prescribe to the principle, "Adapt. Improvise. Overcome." I do what I've got to do in whatever way that works, even when it means that I overdo. If that means that I put on a backpack and stagger my way to the store (or at least to the bus stop, which itself is a quarter of a mile away), then so be it. But this week, and next week's goings on have brought the fact that I am disabled to the forefront of my reality.

Monday, as I posted before, I saw the neurologist about this mystery neuro disease of mine - currently dubbed Spino-Cerebellar Ataxia of Unknown Type since they've disproved the Friedreich's Ataxia with a point mutation on the "normal" gene theory through EMG and other tests. It was time for my 3 month check up to see how I was doing.

Doctor wanted me to start using my rollator. Also prescribed Occupational Therapy. But, as it would happen, the actual appointment made was for Physical Therapy, and in my home.

This was supposed to happen on Friday, but instead happened on Thursday. Why they told me Friday when the therapist I was assigned doesn't work on Fridays, I don't know. But I'm glad I was home or I would have missed it.

As it turned out, I didn't miss much. The physical therapist was a petite redheaded pixie, with an upturned nose, round face save for the pointed chin, and sparkling eyes named Jen. Her hair was cut in what we used to call a Hollywood Burr, a buzz cut with bangs: typically a boy's haircut, but on her it looked cute, oddly enough. She came up as I was using my improvised way of removing leaves from the porch and ramp, using a snow shovel in one hand, crutch in the other, and pushing the leaves down the ramp with it, and commented that it was a unique way to do that job.

We sat and talked as she did the intake, and she didn't even bother filling out paperwork. She agreed with me that what I really need is occupational therapy, and felt that there was nothing she could really do for me. Didn't even bother with having me fill out paperwork She agrees with the doctor that 2 falls in 3 months is too much and that I should use more than my crutch. Of course, if I used my crutch more consistently in the house, it might help. She is very anti-rollator and wants me to use a walker. A walker! Here I am thinking of trying to find someone to date again, and she's suggesting I use a walker. Also, how impractical can you get? I stayed calm, though I let her know I really wasn't ready for that yet. She said I'm in denial. She also said I should be asking friends and family for help.

Today I got a call from the Occupational Therapy people. I will be going to see them on Monday at University Hospital - my appointment is at 8:45 AM. Hopefully that appointment will be better. Though, why does it have to be so god damned early?

It's going to be a busy week. Tuesday I've got my appointment with CAGI for the Energy Assistance program. Friday I have my appointment with my Voc. Rehab. counselor. I've also got to see about getting my flu shot, too. Tried calling the doctor about that on Friday and got no answer. So I'll have to call them again Monday after I get back from OT. If not, I have an appointment on November 2nd with him anyhow.

Anyway, I'm tired, and I've mused about things here long enough. I think I'm going to have some more coffee and see what I can throw together for dinner. And once I get my blood sugar up I'll see about answering some emails.

Thanks for reading.

June 2013

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